At least, that's how we feel lately. However, I must say that we have found a FANTASTIC doctor named Dr. Steve (Lichtenstein) who is the pediatric ophthalmologist that we went to yesterday. We have finally solved the mystery that is Mercedes eye! So it IS a hemangioma that she has in her eye, it is just under the surface instead of on top, like the strawberry hemangiomas that are common on babies. The doctor was able to test her prescription in her eyes through lenses and shining lights in her eyes (which she HATED because they had to dilate her eyes again!). They said that hemangioma is causing a slight astigmatism in her right eye. it isn't a problem yet, but if it keeps getting bigger then it could cause her some problems with her eyesight. So we go in again in one month and they will check it again and see how it has changed. If it becomes a problem then they will treat it. But if it is not a problem then it will go away on its own in a few years. I'm torn on the issue, because I don't want to give her medications or steroids that she doesn't need, but I also don't want her to have a black eye for the first 4 years of her life.
I think that the thing I liked the most about this doctor is that if I think it's getting worse I can email him a picture and he will tell me if I should bring her back in or not. And if I take her in and everything is the same, or no need to worry I don't get charged. If it is something worth worrying about he will fix it. I'm so glad that we are in the right place finally!!
I related news, Kendall went to the doctor, and still no news on his throat or swallowing problems. He doesn't have the Zenker's Diverticulum that we thought, so they are going to try stretching his throat again in December and this doctor will do the esophogram so that he can get a good look at his throat. So at least we know what one of the problems is. :) Sorry about no pics. But that is our update.
6 months ago